Observatoire des droits humains (anglais seulement)

UK Biobank records listed for sale in China: why open data might be the answer

(Version anglaise seulement)

par Simon Kolstoe, Associate Professor of Bioethics, University of Portsmouth

The chief executive of the UK Biobank, one of the world’s largest biomedical databases, recently wrote to over 500,000 participants telling them that some of their data had been made available for sale online through a Chinese website. This wasn’t a data breach or hack, but rather researchers who had legitimately accessed the data trying to sell it.

Although it was stated that participants…

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