Want to know if your data are managed responsibly? Here are 15 questions to help you find out

By P. Alison Paprica, Professor (adjunct) and Senior Fellow, Institute for Health Policy, Management and Evaluation, Dalla Lana School of Public Health, University of Toronto
Amy Hawn Nelson, Research Faculty, Actionable Intelligence for Social Policy (AISP), University of Pennsylvania
Donna Curtis Maillet, Privacy Officer, New Brunswick Institute for Research, Data and Training, Research associate, Faculty of Law, University of New Brunswick
Kimberlyn McGrail, Professor of Health Services and Policy Research, University of British Columbia
Michael J. Schull, Professor, Department of Medicine, University of Toronto

As the volume and variety of data about people increases, so does the number of ideas about how data might be used. Studies show that many people want their data to be used for public benefit.

However, the research also shows that public support for use of data is conditional, and only given when risks such as those related to privacy,…

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