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Social media, activism, trucker caps: the fascinating story behind long COVID

By Deborah Lupton, SHARP Professor, leader of the Vitalities Lab, Centre for Social Research in Health and Social Policy Centre, UNSW Sydney, and leader of the UNSW Node of the ARC Centre of Excellence for Automated Decision-Making and Society, UNSW
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Sufferers collected evidence of their persistent symptoms, and advocated for themselves and for further research. Even the term ‘long COVID’ stems from this activism.


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