Witness: Leonardo’s Biggest Wish – to Live at Home

At age 25, Leonardo Barcellos de Albuquerque is finally where he wants to be – at home, living with his mother in Rio de Janeiro, Brazil. He is creating his fourth music album – he released three other CDs over the past three years – and is also training for bocha, a tossing game that’s a Paralympic sport, similar to bocce or pétanque.  But his joy of being at home will most likely be short-lived. Leonardo has muscular dystrophy, a progressive condition leading to severe muscle degeneration. And his mother, Celia, who is 60, suffers from severe back pain and is not strong enough to lift or move…

© Human Rights Watch - mercredi 23 mai 2018